Got my port out today! It was hard to do, but it was also great. The nurse said it was my "graduation." I guess in a way it is. Maybe I should have gone out to dinner and had a big dessert to celebrate.
Before
After
I'll post a non bandage photo once it can come off. So far its strange to not have the tube in my neck. I didn't realize how much I used to play with it when I was distracted. The things you discover...
Dear Kezia, I just came across you and your husband's story on the internet this morning and cannot stop thinking about you. My son was diagnosed almost a year ago with stage 4 Hodgkins, he started 6 months treatment end of May and we were told he was in remission end of January (the tumour is still big, but they say it's no longer active, I guess like a tree that's been struck by lightening). I feel for you and Mike so much, as you mourn the loss of your beautiful brave little girl. But you're reaching out to other people, sharing your pain and seeking hopeful new outcomes. Because of you and your little girl, other children will be given chances she couldn't have. I send you my warmest good wished. This blog reminded me of how it felt when my son had his port taken out. At first he still felt anxious and still walked a bit hunched on one side, but we took him away to see family in sunnier climes, and as he splashed in a pool with his cousins, he forgot to be careful. That was great! Even better was being able to hug him really tight without hurting him I hope you too find some carefree impulse to run and jump now there's nothing under your skin but you :-)
Awesome!!
ReplyDeleteCongrats! :) I think you should do something to celebrate!
ReplyDeleteLots of love!
Courtney
Congratulations!!
ReplyDeleteCongratulations !! It is a victory and you deserve a little celebration!
ReplyDeleteHELL YEA! Do you feel more human, less robot now? I always felt like some cyborg with that hard port under my skin.
ReplyDeleteToday is a good, love!
Congrats!!!! A celebration is in order!
ReplyDeleteDear Kezia, I just came across you and your husband's story on the internet this morning and cannot stop thinking about you. My son was diagnosed almost a year ago with stage 4 Hodgkins, he started 6 months treatment end of May and we were told he was in remission end of January (the tumour is still big, but they say it's no longer active, I guess like a tree that's been struck by lightening). I feel for you and Mike so much, as you mourn the loss of your beautiful brave little girl. But you're reaching out to other people, sharing your pain and seeking hopeful new outcomes. Because of you and your little girl, other children will be given chances she couldn't have. I send you my warmest good wished. This blog reminded me of how it felt when my son had his port taken out. At first he still felt anxious and still walked a bit hunched on one side, but we took him away to see family in sunnier climes, and as he splashed in a pool with his cousins, he forgot to be careful. That was great! Even better was being able to hug him really tight without hurting him I hope you too find some carefree impulse to run and jump now there's nothing under your skin but you :-)
ReplyDelete