Friday, September 23, 2011
Home Sweet Home
Another short one, as there has been a lot going on and I am still exhausted. We are glad to be home. Saoirse's chemo was started on Monday, and she took it in stride. She was still a bit cranky from surgery, and so this round seemed a bit harder for her. She has been having some mood swings, but I think some of that is from the steroids, and some is from frustration of being tired and achy. We were discharged Thursday night, and after a crazy time with prescription organizing, Saoirse was happy to be going home. She chatted me up the whole ride home, and ran for Fallon as soon as we got in the door. Sadly, this little run made her trip and fall twice, and she went to bed soon after. There will be a lot of adjustments over the next few weeks. She is learning to live on steroids, and we are learning to live with her on steroids. We are also starting to plan for the next phase of treatment. We are doing a lot of research, and are looking into all our options. More to come, and hopefully tonight we will get a good night's sleep.
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God bless you and your beautiful family. You are inspiration for all of us!!!!!!!!!!!!
ReplyDeletePraying for you and your precious girl!!
ReplyDeleteLeslie from Kentucky
As a new mom, I was so touched by your story. I thank you for sharing it publicly on CNN. Keep up the good fight. You and your daughter will be in my heart and prayers.
ReplyDeleteI am so glad to hear that you guys are home and doing well. It is NEVER a comfortable place - hospital even though you try so hard to make it a home. I can only imagine how hard it would be for you to be in that situation, My baby was diagnosed with Severe GERD when he was 3 month old and I thought going through that was hard.. You made me think twice about things and helps me to look back in positive note! Keep us posted and pray for your wellness and Saoirse's! And your husband is a REAL Trooper!
ReplyDeleteStay strong! Praying for you!
ReplyDeleteHugs from Brazil!
I just came across your story and honestly have cried reading every word..I admire your strength and the support you are to your daughter..I'm not a mom yet but your story is extrememly inspiring..You and your family will be in my prayers every night from this moment on..I know that God will give you the strength you need and he will continue to place the people around you to support you in every way..looking forward to doing the necessary research about your story and donate to you and your family...I am one of the young adults leaders in my local church and absolutely plan of sharing this story with them. God bless you and may he keep you strong and give you all the comfort and peace you and your family needs.
ReplyDeleteI am so glad to hear that you guys are home. We are thinking of you all and praying for the both of you!
ReplyDeleteMom and Dad, Doug and I have done a lot of research and if you need anything, please let us know. You can email me or facebook me. Emily should be done with her 2nd transplant soon and we will soon be traveling for proton radiation. My heart is with you all.
Lot of love and prayers
Shannon, Emily's MOm
http://www.facebook.com/emilysjourney
http://www.emilyhubbel.com
http://www.caringbridge.org/visit/emilys