Friday, June 27, 2014

Trying to make a difference

Aside from starting a non profit foundation, I help Mike with our business, CareAline Products. We see every day how our products, that we designed for Saoirse, help kids and adults around the world live more comfortably with PICC and central lines. We never realized that our little idea would be such and important improvement in the lives of all kinds of patients. We also never realized how hard it is to get a medical product - especially a new idea in the world of medicine - off the ground and into the hands of hospitals. While we have made major headway, and overcome a lot of hurdles, there are still many that we have yet to get over, and I'm sure even some that we haven't encountered! 

Here are two ways that you can help us and help lots of patients all at the same time! 

1) Our Indiegogo Campaign!
We are raising funds to help us overcome some of our current road blocks. We have started a campaign on Indiegogo and you can help us by sharing it with your friends and family and on social media like Facebook and Twitter. Also, please watch the video on our page and consider making a contribution, even if it's "just" $1. (if everyone who saw our campaign donated a dollar, we could help so many people!) 

Just share this link : 

Thank you for sharing and for all your support! 

2) What is up with medical billing?!?
If you know a lot about medical billing and how codes get reimbursed by hospitals and/or home medical supply companies, we need your help! We are trying to navigate the world of medical billing codes to find ones that will allow hospitals, home care facilities, and PATIENTS get reimbursed so that they don't have to pay out of pocket (mostly if hospitals can bill it out to patients' insurance, they will have them in the hospital so the patients don't have to find them on their own!). If you know billing codes, please consider helping us find the right way to get our products covered by insurance. Contact us at and we can tell you where we stand so far. 


Monday, June 16, 2014

Off Track....

We have been traveling for the past month. It was a mix of work and pleasure, and a lot of visiting family. (I'll share more about the trip in a few posts over the next week.)

 It was a good trip, but since we have returned, I have been feeling off track. I just feel like we had just started to get a rhythm going before we left, and then the trip threw it all off. Focusing has been hard - with all the laundry to do, things to put away, and exhaustion that comes with being on the road for so long. I think I just need to start in and try and get back into the routine and rhythm and try and get back to "normal" (whatever that is).

I think some of the problem is that I am not seeing as much progress as I would like with my treatment. While things seem to be pretty much stable, I don't feel like there is any improvement in the size of the lymph nodes in my neck. I was hoping that after 2 months on treatment there would at least be some sign that they were starting to go down, and while the other symptoms seem to be stabilized and I do feel more like myself, I'm just disappointed that things are going slowly.

I have a appointment with Dr. Ramakrishnan this week, and oncology appointment next week, and I'll be making sure to get in to do my Tong Ren, and add in some Tui Na. I'm also researching hydrogen peroxide therapy to see if it is something I want to add to my plan and try and kick start my healing a little bit.

More to come on the trip soon, but here is a little sneak peek at some photos....

Sunday, June 1, 2014


Four year olds have dance recitals. Saoirse would have loved being in a dance recital.

Happy Fourth Birthday Saoirse - I hope you are dancing today and every day.